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Data ethics and digital privacy in learning health systems for palliative medicine, 


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Название:  Data ethics and digital privacy in learning health systems for palliative medicine
ISBN: 9781802623109
Издательство: Emerald
Классификация:


ISBN-10: 1802623108
Обложка/Формат: Hardback
Страницы: 176
Вес: 0.39 кг.
Дата издания: 15.11.2023
Серия: Studies in media and communications
Язык: English
Размер: 223 x 150 x 14
Ключевые слова: Illness & addiction: social aspects,Media studies,Medical ethics & professional conduct,Sociology, MEDICAL / Ethics,SOCIAL SCIENCE / Media Studies,SOCIAL SCIENCE / Sociology / General
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Поставляется из: Англии
Описание:

Though algorithms are chosen to eliminate bias in the Learning Health Systems (LHS) that support medical decision making, we are left with unconscious bias present in data due to lack of representation for marginalized populations, particularly in palliative care. Medical practitioners often lack historical foundations for decision making for patients in underrepresented populations, which lead to palliative patients being subjected to uneven quality of care and an absence of treatment goals due to a lack of advocacy and other challenges. 

Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine reviews the ethical foundations that drive our approach, data collection (public data, private data and data privacy), data stratification methodologies to support marginalized and intersectional populations, analysis techniques, algorithmic development to maintain privacy, survival analysis, result interpretation, LHS development, and LHS implementation. These methodologies address the HIPAA Privacy Rule, which clearly establishes the standard to protect digitally held health care data.

Informing both research and practice, Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine brings attention to an important issue that lies at the intersection of medicine, science, and digital technology and communication.



Haunted Data: Affect, Transmedia, Weird Science

Автор: Lisa Blackman
Название: Haunted Data: Affect, Transmedia, Weird Science
ISBN: 135004704X ISBN-13(EAN): 9781350047044
Издательство: Bloomsbury Academic
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Цена: 84480.00 T
Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Haunted Data explores the concepts that are at work in our complex relationships with data. Our engagement with data - big or small - is never as simplistic or straightforward as might first appear. Indeed, Blackman argues that our relationship with data is haunted with errors, dead ends, ghostly figures, and misunderstandings that challenge core assumptions about the nature of thought, consciousness, mind, cognition, affect, communication, control and rationality, both human and non-human.

Using contemporary controversies from 'weird science' including the field of priming and its uncanny relations to animal telepathy, as well as artificial intelligences and their curious relation to psychic research ('clairvoyant computers'), Blackman shows how some of the current crises in science in these areas reveal more than scientists are willing or even able to acknowledge. In addition to proposing a new theory of how we might engage with data, Haunted Data also provides a nuanced survey of the historical context to contemporary debates, going back to the 19th Century origins of modern computation and science to explain the ubiquity and oddness of our data relations.

Drawing from radical philosophies of science, feminist science studies, queer theory, cultural studies, and the field of affect studies, the book develops a manifesto for how artists, philosophers and scientists might engage creatively and critically with science within the context of digital communication.

Digital Heritage and Archaeology in Practice: Data, Ethics, and Professionalism

Автор: Watrall Ethan, Goldstein Lynne
Название: Digital Heritage and Archaeology in Practice: Data, Ethics, and Professionalism
ISBN: 0813069300 ISBN-13(EAN): 9780813069302
Издательство: Mare Nostrum (Eurospan)
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Цена: 75240.00 T
Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Exploringthe use of digital methods in heritage studies and archaeological researchThe two volumes ofDigital Heritage and Archaeology inPractice bring together archaeologists and heritage professionals fromprivate, public, and academic sectors to discuss practical applications ofdigital and computational approaches to the field. Contributors thoughtfullyexplore the diverse and exciting ways in which digital methods are beingdeployed in archaeological interpretation and analysis, museum collections andarchives, and community engagement, as well as the unique challenges that theseapproaches bring.Inthis volume, essays address methods for preparing and analyzing archaeologicaldata, focusing on preregistration of research design and 3D digital topography.Next, contributors use specific case studies to discuss data structuring, withan emphasis on creating and maintaining large data sets and working with legacydata. Finally, the volume offers insights into ethics and professionalism,including topics such as access to data, transparency and openness, scientificreproducibility, open-access heritage resources, indigenous sovereignty,structural racial inequalities, and machine learning.Digital Heritage and Archaeology in Practice highlights the importance of community, generosity, and openness in theuse of digital tools and technologies. Providing a purposeful counterweight tothe idea that digital archaeology requires expensive infrastructure,proprietary software, complicated processes, and opaque workflows, thesevolumes privilege perspectives that embrace straightforward and transparentapproaches as models for the future.

Palliative Care and Ethics

Автор: Quill Timothy E., Miller Franklin G.
Название: Palliative Care and Ethics
ISBN: 0199316678 ISBN-13(EAN): 9780199316670
Издательство: Oxford Academ
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Цена: 87650.00 T
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Описание: The practice of palliative care and hospice is filled with overt and sometimes covert ethical challenges. These challenges are addressed by leading international palliative care and hospice scholars under three main domains: care delivery systems; addressing the many dimensions of suffering; and difficult decisions near the end of life.

Hospice Ethics

Автор: Kirk, Timothy W.; Jennings, Bruce
Название: Hospice Ethics
ISBN: 0199943834 ISBN-13(EAN): 9780199943838
Издательство: Oxford Academ
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Цена: 59130.00 T
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Описание: This book is the first comprehensive collection devoted to analyzing distinctive ethical issues arising in the delivery of hospice care and designed to promote best ethical practices for hospice care professionals and organizations in the United States.

Palliative Care and Ethics

Автор: Quill Timothy E., Miller Franklin G.
Название: Palliative Care and Ethics
ISBN: 0190604441 ISBN-13(EAN): 9780190604448
Издательство: Oxford Academ
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Цена: 107750.00 T
Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: The practice of palliative care and hospice is filled with overt and sometimes covert ethical challenges. These challenges are addressed by leading international palliative care and hospice scholars under three main domains: care delivery systems; addressing the many dimensions of suffering; and difficult decisions near the end of life.

Partners in Palliative Care

Автор: Morrissey, Mary Beth
Название: Partners in Palliative Care
ISBN: 0415527767 ISBN-13(EAN): 9780415527767
Издательство: Taylor&Francis
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Цена: 153120.00 T
Наличие на складе: Поставка под заказ.

Digital Ethics Rhetoric and Responsibility in Online Aggression

Автор: Jessica Reyman, Erika Sparby
Название: Digital Ethics Rhetoric and Responsibility in Online Aggression
ISBN: 0367217953 ISBN-13(EAN): 9780367217952
Издательство: Taylor&Francis
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Цена: 148010.00 T
Наличие на складе: Поставка под заказ.
Описание: Digital Ethics delves into the shifting legal and ethical landscape in digital spaces and explores productive approaches for theorizing, understanding, and navigating through difficult ethical issues online. This book will be of interest to researchers and teachers in the fields of digital rhetoric, composition, and writing studies.

Privacy, Surveillance, and the New Media You

Автор: Lamoureux, Edward Lee
Название: Privacy, Surveillance, and the New Media You
ISBN: 1433124947 ISBN-13(EAN): 9781433124945
Издательство: Peter Lang
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Цена: 62430.00 T
Наличие на складе: Есть у поставщика Поставка под заказ.
Описание:

Very little in the American way of life functions adequately under surveillance. Democracy itself may be at mortal risk due to the loss of privacy and the increase in surveillance.

Examining challenges in a wide range of contexts, this book investigates and critically examines our systems of data management, including the ways that data are collected, exchanged, analyzed, and re-purposed.

The volume calls for re-establishing personal privacy as a societal norm and priority, requiring action on the part of everyone at personal, societal, business, and governmental levels. Because new media products and services are professionally designed and implemented to be frictionless and highly rewarding, change is difficult and solutions are not easy. This volume provides insight into challenges and recommended solutions.


Privacy, surveillance, and the new media you

Автор: Lamoureux, Edward Lee
Название: Privacy, surveillance, and the new media you
ISBN: 1433124955 ISBN-13(EAN): 9781433124952
Издательство: Peter Lang
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Цена: 111340.00 T
Наличие на складе: Есть у поставщика Поставка под заказ.
Описание:

Very little in the American way of life functions adequately under surveillance. Democracy itself may be at mortal risk due to the loss of privacy and the increase in surveillance.

Examining challenges in a wide range of contexts, this book investigates and critically examines our systems of data management, including the ways that data are collected, exchanged, analyzed, and re-purposed.

The volume calls for re-establishing personal privacy as a societal norm and priority, requiring action on the part of everyone at personal, societal, business, and governmental levels. Because new media products and services are professionally designed and implemented to be frictionless and highly rewarding, change is difficult and solutions are not easy. This volume provides insight into challenges and recommended solutions.


Against the Hypothesis of the End of Privacy

Автор: Paola Tubaro; Antonio A Casilli; Yasaman Sarabi
Название: Against the Hypothesis of the End of Privacy
ISBN: 3319024558 ISBN-13(EAN): 9783319024554
Издательство: Springer
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Цена: 46570.00 T
Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: Several prominent public voices have advanced the hypothesis that networked communications erode the value of privacy in favor of a transparent connected existence.

Cyber-risk and Youth

Автор: Adorjan
Название: Cyber-risk and Youth
ISBN: 1138067385 ISBN-13(EAN): 9781138067387
Издательство: Taylor&Francis
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Цена: 148010.00 T
Наличие на складе: Есть у поставщика Поставка под заказ.
Описание: This book explores how young people define, perceive, and experience cyber-risks, how they respond to both the messages they are receiving from society regarding their safety online, and the various strategies employed to regulate online activity.

Screen-obsessed: Parenting in the Digital Age

Автор: Wonsun Shin, May Oo Lwin
Название: Screen-obsessed: Parenting in the Digital Age
ISBN: 9811203865 ISBN-13(EAN): 9789811203862
Издательство: World Scientific Publishing
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Цена: 47520.00 T
Наличие на складе: Есть у поставщика Поставка под заказ.
Описание:

Screen-obsessed: Parenting in the Digital Age is the first book solely focusing on parental supervision of children's media use. This book distills important information regarding how parents can effectively guide their offspring living in the multimedia environment. This book discusses an extensive range of theories, issues, and subjects of parental mediation. Readers will discover how parental mediation works, new and traditional theoretical facets, and how this knowledge can be applied in various settings pertinent to the family.



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