Principles and Practice in Biobank Governance, Stranger, Mark

Автор: Stranger
Название: Principles and Practice in Biobank Governance
ISBN: 1138276936 ISBN-13(EAN): 9781138276932
Издательство: Taylor&Francis
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Цена: 53070.00 T
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Описание: Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.

Автор: Deborah Mascalzoni
Название: Ethics, Law and Governance of Biobanking
ISBN: 940179572X ISBN-13(EAN): 9789401795722
Издательство: Springer
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Цена: 111790.00 T
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Описание: Ethics review should be then not merely application of bureaucracy and a burden for researchers but an arena where researchers discuss their projects, receive advice and practice their ethics skills.

Автор: Colcelli
Название: GDPR Requirements for Biobanking Activities Across Europe
ISBN: 3031429435 ISBN-13(EAN): 9783031429439
Издательство: Springer
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Цена: 204970.00 T
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Описание: The book deals with the effective operation of the rules related to biomedical research and pays attention to the activities of the national legislatures of the 27 Member States in the field of scientific research. This multilevel system has an impact on biobanking activity. The book answers questions realized by operators on the main biobanks around the EU in the field of GDPR. The authors and editors used the questions born from brainstorming among members of the Association European, Middle East & Africa for Biopreservation and Biobanking (ESBB) to offer to the operators in biobanking activity and researchers quickly answer to their daily questions, but with authors highest quality. Further the book provides a comprehensive review of the rapidly expanding field of biobanking. It provides researchers and scholars working on biobanking and bio-sharing and more in general in the university hospitals and clinical trial consortiums, and companies, biomedical researchers, but also jurists and the professionals (in particular judges, lawyers, officers) an instrument rigorous but easy to use of the GDPR in the case of biobanking activities. The book identifies a methodological path to tackle the legal or ethical problem on a specific scientific-technological to verify existing solutions and give ideas for future applications. The importance of the legal solution influences the implementation of the development of the biobanking activity service itself.

Автор: Kaye, Jane
Название: Governing Biobanks
ISBN: 184113905X ISBN-13(EAN): 9781841139050
Издательство: Hart Publishing
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Цена: 105600.00 T
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Описание: Using interview data this book provides unique insights and makes recommendations about the governance of biobanking in the future.

Автор: T. Brandsen; W. Trommel; B. Verschuere
Название: Manufacturing Civil Society
ISBN: 1349468916 ISBN-13(EAN): 9781349468911
Издательство: Springer
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Цена: 74530.00 T
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Описание: "Faced with declining social cohesion, more and more governments are trying to revitalise society by attempting to reconstruct local communities, civil society and citizenship. One way to do this is to share public responsibilities with organized citizens and third sector organisations. As a result, relationships with citizens, communities and third sector organisations are increasingly brought within the realm of public management, subject to accountability procedures, embedded in hierarchical structures, included in arenas for competition and contracting. This volume examines the emergence of this new type of governance, exploring the dynamics, effectiveness and appropriateness of this governmental response to the fragmentation of modern social life. "--

Автор: Hallinan Dara
Название: Protecting Genetic Privacy in Biobanking Through Data Protection Law
ISBN: 0192896474 ISBN-13(EAN): 9780192896476
Издательство: Oxford Academ
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Цена: 211130.00 T
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Описание: Hallinan argues that the substantive framework presented by the GDPR offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking.

Автор: Lars Moratis; Frans Melissen; Samuel O. Idowu
Название: Sustainable Business Models
ISBN: 3030088014 ISBN-13(EAN): 9783030088019
Издательство: Springer
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Цена: 307450.00 T
Наличие на складе: Поставка под заказ.
Описание: This book provides a rich overview and takes a closer look at the current state of theory and practice in the field of sustainable business models. The chapters in this book examine and analyze existing and new approaches towards sustainable business models and showcase the implementation of sustainable business through both quantitative and qualitative studies, including several case studies and many practical examples. It approaches these issues from the standpoints of diverse business disciplines to yield new insights and ideas that are relevant from both an academic and professional perspective. In its essence, the book examines how firms’ value creation processes can be driven by sustainability and social responsibility and how this impacts business and society. Readers will find a range of sustainable business models that have been employed and are being pioneered in various industries around the globe – which are thoroughly investigated and discussed, and put into a comprehensive conceptual framework.